PanCare. Lucerne, October Lars Hjorth, Julie Byrne & Helena van der Pal
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2 PanCare Lucerne, October 2014 Lars Hjorth, Julie Byrne & Helena van der Pal 2
3 Agenda 1. Opening & welcome 2. PanCare 3. PanCare Year plan PanCare membership 5. Charity status and trademark protection 6. Any other business 7. Closing 3
4 PanCare Multidisciplinary pan European network of professionals, survivors and their families 4
5 PanCare PanCare aims to ensure that every European survivor of childhood and adolescent cancer receives: optimal long-term care equal access to care research into the late effects guidelines for the care of survivors awareness and knowledge 5
6 History of PanCare 6
7 History of PanCare ESLCCC2007 Lund Apr I-BFM ELTEC Budapest Oct PanCare foundation Lund 2008 PanCare meeting # 2-13 in Graz, Modena, Newcastle, Paris, Mainz, Brno, Amsterdam, Bucharest, London, Genova, Amsterdam (again), Wroclaw PanCareSurFup PanCare meeting # 14 Lucerne, Oct ENCCA PanCareLIFE
8 PanCare Society Founded in Amsterdam on Oct 2nd 2013 by the 15 members of the PanCare Board Legal entity under Dutch law 8
9 PanCare Society Advantages and disadvantages Articles of Association By-laws Year plan Treasurer report Secretarial report General Assembly 9
10 PanCare Society Members! 15 members: founding PanCare Board members 10
11 PanCare Society Name Country Profession Function Edit Bárdi Hungary Paediatric Oncology member Julianne Byrne Ireland Epidemiology honorary treasurer Stephan Essig Switzerland Epidemiology/Survivor member Desiree Grabow Germany Cancer Registry member Mike Hawkins England Epidemiology member Peter Kaatsch Germany Cancer Registry member Sabine Karner Austria Project worker ICCCPO/Survivor member Tomas Kepak Czech Republic Paediatric Oncology member Gill Levitt England Paediatric Oncology member Gisela Michel Switzerland Psychology and Cancer Registry member Helena van der Pal Netherlands Medical Oncology honorary secretary Monica Terenziani Italy Paediatric Oncology member Riccardo Haupt Italy Paediatric Oncology/Epidemiology member Rod Skinner England Paediatric Oncology member Lars Hjorth Sweden Paediatric Oncology chairperson 11
12 PanCare Board membership Board of PanCare At least 3, up to 15 members Chairperson, Secretary and Treasurer General Assembly appoints board members after nomination by the Board Board membership term: max 3 years, with 1 possible reelection Duties: rule the PanCare Society, carry out the Year Plan 12
13 Year Plan 2014 Goals PanCare Board: Official membership Board member nomination and election procedure Sustainable website Plan for donations Further trademark protection Meeting Luzern/ ESLCCC Horizon 2020/other funding possiblities 13
14 Year Plan 2014 Obtained charity status Protected our PanCare logo and name Website Meetings Horizon 2020 PanCare membership 14
15 PanCare membership Membership: European citizens or workplace in Europe Endorse aim and statutes Approved by the Board Contribution: yearly, written termination Voting rights, supporting our aims 15
16 PanCare Membership Great news! Official PanCare membership is now open Register online Yearly fee 2014: no fee: voluntary 2015: professionals 75 euro nurses 50 euro survivors/parents/students no fee 16
17 PanCare Membership Please register as an official PanCare member! 17
18 Future plans Build our network and society Obtain more funds 2 meetings a year Website: 18
19 Aim of PanCare The long term strategic aim of PanCare is to ensure that every European survivor of childhood and adolescent cancer receives optimal long term care 19
20 Thank you! On behalf of the PanCare Board Lars Hjorth, Julianne Byrne, Helena van der Pal, Edit Bárdi, Stephan Essig, Desiree Grabow, Mike Hawkins, Peter Kaatsch, Sabine Karner, Tomas Kepak, Gill Levitt, Gisela Michel, Monica Terenziani, Riccardo Haupt, Rod Skinner 20
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