Proxy Interviews. For example: CASEID case type 00003R 3 R 00011R 11 R

Transcription

1 Proxy Interviews A proxy interview was attempted when a main respondent was deceased or too ill to be interviewed at time 3, unless they had an NSFH1 spouse/partner. If there was to be an interview with a spouse/partner, this interview would cover the proxy questions about the main respondents death or illness as part of a more extensive series on this topic. There were two exceptions. Proxy interviews were sought if the NSFH1 spouse/partner was deceased or too ill to be interviewed, or if the couple was not together at time 2. A proxy was needed in the latter case because the NSFH3 spouse interview asked about experiences since wave 2, and hence any questions on spousal death or illness would not be about the main respondent. Proxy interviews for main respondents were not sought in the event that a surviving spouse/partner refused the wave 3 interview or could otherwise not be interviewed. Proxy interviews were only required for main respondents; no proxy was sought for deceased or too ill spouse/partners or focal children. ZY5 specifies whether the proxy interview was occasioned by death or illness. Variables ZY701 thru ZY27 are about Main Respondents who have died, the remainder are about those who were too ill to interview. The questions asked are represented in italics, and the variable name and label, appear before the frequency distribution on each variable. The frequencies and codes below are followed by descriptive statistics for the variables identified by their variable names. Cases are identified by three variables, CASEID, CASE, and TYPE. CASEID is a string variable and CASE is numeric. Since proxy interviews were conducted only respect to the main respondent, all are type R. For example: CASEID case type 00003R 3 R 00011R 11 R

2 FREQUENCIES How are you related to [MAINR]? Proxyint1 relation to main R Valid 1 SPOUSE/PARTNER SON/STEPSON SON-IN-LAW DAUGHTER/STEPDAUGHTER DAUGHTER-IN-LAW BROTHER BROTHER-IN-LAW SISTER SISTER-IN-LAW OTHER RELATIVE NEIGHBOR FRIEND ADMINISTRATOR OF ESTATE HOME HEALTH AID NURSING HOME/HOSPITAL STAFF Total Missing -2 REFUSED DON'T KNOW Total

3 ZY5 reason for proxy Valid 1 R IS DECEASED R TOO ILL TO BE INTERVIEWED Total I have some questions about [MAINR]'s experiences between the time we interviewed [him/her] in [YEAR] and [his/her]death. In what month and year did [he/she] die? ZY701 month of death Valid Total Missing -1 DON'T KNOW

4 System Total ZY702 year of death Valid Total Missing -1 DON'T KNOW System Total

5 What was the MAIN cause of [his/her]death? ZY8 main cause of death Frequency Percent Valid Percent Cumulative Valid 1 HEART DISEASE, HEART ATTACK CANCER (MALIGNANCY, LEUKEMIA) STROKE ACCIDENT PNEUMONIA/INFLUENZA SUICIDE DIABETES CIRRHOSIS OF LIVER EMPHYSEMA, CHRONIC BRONCHITIS, OR ASTHMA SOME OTHER CAUSE (ENTER RESPONSE FOLLOWED BY //) Total Missing -2 REFUSED DON'T KNOW System Total Total ZY8DTH OTHER CAUSE OF DEATH (CODE 12 ABOVE) CODED

6 Valid 1 HEART DISEASE, HEART ATTACK CANCER (MALIGNANCY, LEUKEMIA) STROKE ACCIDENT PNEUMONIA/INFLUENZA DIABETES CIRRHOSIS OF LIVER EMPHYSEMA, CHRONIC BRONCHITIS, OR ASTHMA MULTIPLE SCLEROSIS ALZHEIMER'S INFECTIONS LIVER FAILURE KIDNEY FAILURE BLOOD CLOT ANEURYSM MULTI-SYSTEM FAILURE AIDS LIVER DISEASE OLD AGE PARKINSON'S DISEASE CEREBRAL HEMORRHAGE NATURAL CAUSES STOMACH PROBLEMS, INTESTINAL BLOCKAGE BREATHING PROBLEMS BRAIN DAMAGE SUDDEN DEATH SYNDROME DEHYDRATION, MALNUTRITION SOME OTHER CAUSE (SPECIFY) NO ANSWER Total Missing System

7 How long was [MAINR] ill with the condition that resulted in [his/her] death? ZY9 how long ill Valid 0 NEVER ILL, DIED SUDDENLY Total

8 Missing -1 DON'T KNOW System Total

9 ZY10 units of how long ill Valid 1 DAYS WEEKS MONTHS YEARS Total Missing System In addition to the condition that [MAINR] s death, did [he/she have any other chronic illness or condition at the time [he/she] died? ZY11 any other illness at time of death Valid 1 YES NO Total Missing -2 REFUSED DON'T KNOW System Total

10 ZY12DTH5 CAUSE OF DEATH CODED Frequency Percent Valid Percent Cumulative Valid 1 HEART DISEASE, HEART ATTACK CANCER (MALIGNANCY, LEUKEMIA) STROKE ACCIDENT PNEUMONIA/INFLUENZA DIABETES EMPHYSEMA, CHRONIC BRONCHITIS, OR ASTHMA MULTIPLE SCLEROSIS ALZHEIMER'S INFECTIONS KIDNEY FAILURE ANEURYSM MULTI-SYSTEM FAILURE OLD AGE PARKINSON'S DISEASE STOMACH PROBLEMS, INTESTINAL BLOCKAGE BREATHING PROBLEMS BLOOD POISONING, BLEEDING DISORDER, BLOOD DISORDER BRAIN DAMAGE SOME OTHER CAUSE (SPECIFY) NO ANSWER Total Missing System Total

11 In the 12 months prior to [his/her] death about how many weeks was [he/she] hospitalized? ZY13 weeks hosp 12 mo prior to death Valid -4 WAS NOT HOSPITALIZED LESS THAN ONE WEEK Total Missing -1 DON'T KNOW System Total

12 In the 12 months before [he/she] died, how many weeks was [he/she]in a nursing home, convalescent center, or similar place? ZY14 weeks nursing home 12 mo prior to death Frequency Percent Valid Percent Cumulative Valid -4 WAS NOT IN NURSING HOME, CONVALESCENT CENTER, ETC LESS THAN ONE WEEK

13 Total Missing -2 REFUSED DON'T KNOW System Total Total Not counting time in a hospital or a nursing home, how many (additional) weeks did [he/she] require daily physical care during the 12 months before [his/her] death? By physical care we mean help eating, bathing, dressing, or going to the bathroom. ZY15 add weeks required care 12 mo prior to death Valid -4 DID NOT REQUIRE DAILY PHYSICAL CARE LESS THAN ONE WEEK

14 R WAS IN A NURSING HOME THE LAST 12 MONTHS Total Missing -2 REFUSED DON'T KNOW System Total

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16 Who provided most of this care? ZY16 who provided most care Frequency Percent ValidPercent Cumulative Valid -6 SOME OTHER PERSON (ENTER RESPONSE FOLLOWED BY //) SPOUSE/PARTNER SON/STEPSON DAUGHTER/STEPDAUGHTER DAUGHTER-IN-LAW BROTHER SISTER OTHER FEMALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) FEMALE FRIEND PAID HELP Total Missing -1 DON'T KNOW 5.5 System Total Total Just before [he/she] died, was [he/she]living: in [his/her own house or apartment, in the home of a son or daughter, in a nursing home, or somewhere else? ZY16 where living just before death Frequency Percent Valid Percent Cumulative Valid 1 IN (HIS/HER) OWN HOUSE OR APARTMENT IN THE HOME OF A SON OR DAUGHTER

17 3 IN A NURSING HOME SOMEWHERE ELSE (ENTER RESPONSE FOLLOWED BY //) Total Missing -1 DON'T KNOW 2.2 System Total Total At any time since [LAST INT DATE) and (DATE OF DEATH] did [he/she live in the household of a son, daughter, or other relative? ZY18 since (date) live at son/daughter/relative Valid 1 YES NO Total Missing -1 DON'T KNOW 6.6 System Total With whom did [he/she] live? Z19 lived with whom

18 Frequency Percent ValidPercent Cumulative Valid -6 OTHER (ENTER RESPONSE FOLLWED BY //) SON/STEPSON DAUGHTER/STEPDAUGHTER DAUGHTER-IN-LAW BROTHER SISTER SISTER-IN-LAW OTHER FEMALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) OTHER MALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) Total Missing System Total Altogether, since [YEAR], how long did [he/she]live in the household of a son, daughter, or other relative? Z20 how long at son/daugher/relative Valid -9 R'S ENTIRE LIFE NEVER

19 Total Missing -2 REFUSED DON'T KNOW 6.6 System Total ZY21 units at son/daughter/relative Valid 1 DAYS WEEKS MONTHS YEARS Total Missing System

20 At the time of [MAINR] s death, was [he/she] receiving income from a pension plan based on [his/her] own employment, other than Social Security? ZY22 receive pension other than SS at time of death Valid 1 YES NO Total Missing -2 REFUSED DON'T KNOW System Total Did [he/she] work for pay at any time since [year]? ZY23 work for pay since (date) Valid 1 YES NO Total Missing -1 DON'T KNOW System

21 Total

22 In what year did [he/she] last work for pay? ZY24 year last worked for pay Valid Total Missing -1 DON'T KNOW System Total In the last year that [he/she] was working, about how many hours per week did [he/she] usually work? ZY26 hours per week last year working

23 Valid Total Missing -1 DON'T KNOW System Total Were there any periods of three months or longer between [LAST INT DATE] and when [he/she] stopped working in [DATE STOPPED WORKING ALTOGETHER] when [he/she] was not working? ZY27 any 3+ mo not work from (date) to date stopped Valid 1 YES

24 2 NO Total Missing -1 DON'T KNOW System Total

25 QUESTIONS ABOUT MAIN Rs TOO ILL TO INTERVIEW Where is [he/she] currently living? ZY28 where R currently lives Valid -6 OTHER (ENTER RESPONSE FOLLOWED BY //) IN (HIS/HER) OWN HOUSE OR APARTMENT IN THE HOME OF A SON OR DAUGHTER IN THE HOME OF A GRANDCHILD IN THE HOME OF A SISTER OR BROTHER IN (HIS/HER) PARENT'S HOUSE WITH AN OTHER RELATIVE IN A NURSING HOME IN THE HOSPITAL IN A DRUG/ALCOHOL TREATMENT CENTER IN A RETIREMENT HOME Total Missing System In what month and year did [he/she] begin living (there)? ZY2901 month began living there Valid

26 Total Missing -1 DON'T KNOW System Total ZY02 year began living there Valid

27 Total Missing -2 REFUSED DON'T KNOW System Total

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29 How many people live with [him/her] in that household? ZY30 how many people live there Valid 0 NONE EIGHT OR MORE Total Missing -1 DON'T KNOW 1.1 System Total How are these people related to [him/her]? ZY31P01A how are they related - 1 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) SPOUSE/PARTNER SON/STEPSON DAUGHTER/STEPDAUGHTER DAUGHTER-IN-LAW

30 7 MOTHER SISTER GRANDSON GRANDDAUGHTER FEMALE FRIEND GRANDCHILD/REN OTHER FEMALE RELATIVE Total Missing -1 DON'T KNOW 1.1 System Total YZ31P01B how are they related - 2 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) SPOUSE/PARTNER SON/STEPSON DAUGHTER/STEPDAUGHTER SON-IN-LAW DAUGHTER-IN-LAW MOTHER SISTER GRANDSON GRANDDAUGHTER FEMALE FRIEND GRANDCHILD/REN GREAT GRANDCHILD/REN OTHER FEMALE RELATIVE OTHER MALE RELATIVE

31 Total Missing -1 DON'T KNOW 4.4 System Total ZY31P01C how are they related - 3 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) SPOUSE/PARTNER SON/STEPSON DAUGHTER/STEPDAUGHTER SON-IN-LAW DAUGHTER-IN-LAW SISTER GRANDSON GRANDDAUGHTER GRANDCHILD/REN OTHER MALE RELATIVE Total Missing -2 REFUSED DON'T KNOW 4.4 System Total

32 ZY31P01D how are they related - 4 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) DAUGHTER/STEPDAUGHTER SON-IN-LAW DAUGHTER-IN-LAW GRANDDAUGHTER GRANDCHILD/REN OTHER FEMALE RELATIVE OTHER MALE RELATIVE Total Missing -2 REFUSED DON'T KNOW 4.4 System Total ZY31P01E how are they related - 5 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) SON/STEPSON GRANDSON GRANDDAUGHTER GREAT GRANDCHILD/REN OTHER MALE RELATIVE Total

33 Missing -1 DON'T KNOW 5.5 System Total ZY31P01F how are they related -6 Valid 1 SPOUSE/PARTNER GRANDSON Total Missing -1 DON'T KNOW 4.4 System Total ZY31P01G how are they related - 7 Valid 3 DAUGHTER/STEPDAUGHTER OTHER FEMALE RELATIVE Total Missing -1 DON'T KNOW 2.2

34 System Total ZY31P01H how are they related - 8 Valid 20 OTHER FEMALE RELATIVE Missing -1 DON'T KNOW 2.2 System Total What is the most serious condition that [he/she] has? ZY32T01A CHRONIC HEALTH CONDITION 1 (ZY32T01) Valid 103 PNEUMONIA FRACTURES AND DISLOCATIONS CANCER BENIGN TUMOR (SERIOUS) ASTHMA OTHER CHRONIC RESPIRATORY DISEASES HEART ATTACK HEART TROUBLE (SERIOUS) STROKE, THROMBOSIS, HEMATOMA HYPERTENSION

35 217 CHRONIC CIRCULATORY DISEASE BLOOD DISORDERS DIABETES MELLITUS CHRONIC SKIN DISEASE ARTHRITIS AND RHEUMATISM OTHER CHRONIC MUSCULOSKELETAL DISORDER SEIZURES PEPTIC ULCER CHRONIC URINARY OR MALE GENITAL DISEASES BLINDNESS SERIOUS VISUAL IMPAIRMENTS CHRONIC HEARING PROBLEMS PARALYSIS SERIOUS CHHRONIC NEUROLOGICAL DISORDERS MINOR PSYCHOLOGICAL PROBLEMS INTERMEDIATE PSYCHIATRIC PROBLEMS MENTAL ILLNESS MENTAL RETARDATION SENILITY RESIDUAL CHRONIC CONDITION FRACTURE OR DISLOCATION SETTING HEART OPERATION WALKING PROBLEMS NOT SPECIFIED NO ANSWER Total Missing System ZY32T01B CHRONIC HEALTH CONDITION 2 (ZY32T01)

36 Valid 126 ACUTE CIRCULATORY CONDITIONS ACUTE MUSCULOSKELETAL DISORDERS (SERIOUS) FRACTURES AND DISLOCATIONS CONNECTIVE TISSUE DISORDER CANCER ASTHMA OTHER CHRONIC RESPIRATORY DISEASES HEART ATTACK HEART TROUBLE (SERIOUS) STROKE, THROMBOSIS, HEMATOMA HYPERTENSION CHRONIC CIRCULATORY DISEASE DIABETES MELLITUS ARTHRITIS AND RHEUMATISM MILD DIGESTIVE DISEASES BLINDNESS SERIOUS VISUAL IMPAIRMENTS CHRONIC HEARING PROBLEMS PARALYSIS MINOR PSYCHOLOGICAL PROBLEMS INTERMEDIATE PSYCHIATRIC PROBLEMS MENTAL RETARDATION SENILITY RESIDUAL CHRONIC CONDITION DENTAL PROBLEMS FRACTURE OR DISLOCATION SETTING HEART OPERATION WALKING PROBLEMS NOT SPECIFIED Total Missing System

37 What is the next most serious condition [he/she] has? ZY32T02A CHRONIC HEALTH CONDITION 1 (ZY32T02) Valid 103 PNEUMONIA ACUTE VERTEBRAL OR LUMBAR DISORDER (MILD) ACUTE MUSCULOSKELETAL DISORDERS (SERIOUS) FRACTURES AND DISLOCATIONS CONNECTIVE TISSUE DISORDER CANCER BENIGN TUMOR (SERIOUS) ASTHMA CHRONIC SINUSITIS OR BRONCHITIS OTHER CHRONIC RESPIRATORY DISEASES HEART TROUBLE (MILD) HEART TROUBLE (SERIOUS) STROKE, THROMBOSIS, HEMATOMA HYPERTENSION CHRONIC CIRCULATORY DISEASE THYROID DISEASES DIABETES MELLITUS ARTHRITIS AND RHEUMATISM OTHER CHRONIC MUSCULOSKELETAL DISORDER SEIZURES MILD DIGESTIVE DISEASES CHRONIC URINARY OR MALE GENITAL DISEASES BLINDNESS SERIOUS VISUAL IMPAIRMENTS CHRONIC HEARING PROBLEMS PARALYSIS SERIOUS CHHRONIC NEUROLOGICAL DISORDERS MINOR PSYCHOLOGICAL PROBLEMS INTERMEDIATE PSYCHIATRIC PROBLEMS MENTAL RETARDATION

38 254 SENILITY RESIDUAL CHRONIC CONDITION AUTO ACCIDENT OTHER DIGESTIVE OPERATIONS MASTECTOMY CANCER OPERATION HEART OPERATION WALKING PROBLEMS NOT SPECIFIED NO ANSWER Total Missing System What is the next most serious condition [he/she] has? ZY32T02B CHRONIC HEALTH CONDITION 2 (ZY32T02) Valid 201 CANCER HEART TROUBLE (SERIOUS) STROKE, THROMBOSIS, HEMATOMA HYPERTENSION CHRONIC CIRCULATORY DISEASE DIABETES MELLITUS ARTHRITIS AND RHEUMATISM CHRONIC URINARY OR MALE GENITAL DISEASES SERIOUS VISUAL IMPAIRMENTS CHRONIC HEARING PROBLEMS INTERMEDIATE PSYCHIATRIC PROBLEMS MENTAL RETARDATION SENILITY

39 298 RESIDUAL CHRONIC CONDITION HEART OPERATION WALKING PROBLEMS NOT SPECIFIED Total Missing System Does [he/she] need assistance with bathing or showering? ZY33 need assistance with bathing/showering Valid 1 YES NO Total Missing -1 DON'T KNOW 2.2 System Total (Does [he/she need assistance with)...dressing? ZY34 need assistance with dressing

40 Valid 1 YES NO Total Missing -1 DON'T KNOW 2.2 System Total (Does [he/she need assistance with)...eating? ZY35 need assistance with eating Valid 1 YES NO Total Missing -1 DON'T KNOW 3.3 System Total (Does [he/she] need assistance with)

41 ...getting in or out of bed or a chair? ZY36 need assistance with getting in/out bed/chair Valid 1 YES NO Total Missing -1 DON'T KNOW 6.6 System Total (Does [he/she] need assistance with)...using the toilet? ZY37 need assistance with using toilet Valid 1 YES NO Total Missing -1 DON'T KNOW 2.2 System Total

42 How long has [he/she] needed assistance with these activities? ZY38 how long needed assistance Valid 0 NEVER NEEDS ASSISTANCE Total Missing -1 DON'T KNOW System Total unit of time needed assist

43 Valid 2 WEEKS MONTHS YEARS Total Missing System In the past 12 months, has [he/she] received help or assistance from anyone WHO WAS NOT LIVING WITH [him/her]? ZY40 receive help past 12 mo from not living with Frequency Percent Valid Percent Cumula Valid 1 YES NO R IN NURSING HOME OR OTHER FACILITY FOR 12 MONTHS OR MORE Total Missing -1 DON'T KNOW 2.2 System Total Total Who provided the most help? ZY41 who provided most help

44 Frequency Percent Valid Percent Cumulative Valid -6 SOME OTHER PERSON (ENTER RESPONSE FOLLOWED BY //) SPOUSE/PARTNER SON/STEPSON DAUGHTER/STEPDAUGHTER DAUGHTER-IN-LAW BROTHER SISTER SISTER-IN-LAW OTHER FEMALE RELATIVE PAID HELP MALE FRIEND Total Missing -1 DON'T KNOW 2.2 System Total Total ZY42 male or female Valid 1 MALE FEMALE Total Missing -1 DON'T KNOW System

45 Total In about how many different weeks during the last 12 months did this person help? ZY43 weeks help last 12 mo from this person Valid 0 LESS THAN ONE WEEK Total Missing -1 DON'T KNOW 4.4 System

46 Total During those weeks, about how many hours per week on the average did this person help? ZY44 average hours helped per week Valid 0 LESS THAN ONE HOUR PER WEEK OR MORE HOURS PER WEEK Total

47 Missing -2 REFUSED DON'T KNOW System Total At any time in the last 12 months, did [he/she] RECEIVE help with personal care from anyone WHO WAS LIVING WITH [him/her]? ZY45 receive help past 12 mo from living with Frequency Percent Perrcent Cumulative Valid 1 YES NO R IN NURSING HOME OR OTHER FACILITY FOR 12 MONTHS OR MORE Total Missing -2 REFUSED DON'T KNOW 2.2 System Total Total Who provided [him/her] with the most help with personal care? ZY46 who provided most help

48 Frequency Percent ValidPercent Cumulative Valid -6 SOME OTHER PERSON (ENTER RESPONSE FOLLOWED BY //) SPOUSE/PARTNER SON/STEPSON DAUGHTER/STEPDAUGHTER DAUGHTER-IN-LAW BROTHER-IN-LAW SISTER OTHER FEMALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) PAID HELP Total Missing System Total About how many weeks during the last 12 months did [he/she] receive help with personal care from this person? ZY47 weeks help last 12 mo from this person Valid 0 LESS THAN ONE WEEK

49 Total Missing -1 DON'T KNOW 2.2 System Total Does [he/she] receive income from a pension plan based on [his/her] own employment, other than Social Security? ZY48 receive pension other than ss Valid 1 YES NO Total Missing -2 REFUSED DON'T KNOW System Total

50 Did [he/she] work for pay at any time since [DATE LAST INT]? ZY49 work for pay since (date) Valid 1 YES NO Total Missing -1 DON'T KNOW 6.6 System Total In what year did [he/she] last work? ZY50 year last worked Valid

51 Total Missing -1 DON'T KNOW 1.1 System Total In the last year that [he/she] was working, about how many hours per week did [he/she] usually work? ZY52 hours per week last year working Valid Total Missing System

52 Were there any periods of three months or longer between [DATE OF LAST INT] and [DATE] when [he/she] stopped working in [fill qzz50] when [he/she] was not working? ZY53 any 3+ mo not work from (date) to date stopped Valid 1 YES NO Total Missing -1 DON'T KNOW 2.2 System Total At any time since [DATE LAST INT] did [he/she] live in the household of a son or daughter or other relative? ZY54 since (date) live at son/daughter/relative Valid 1 YES NO Total Missing -1 DON'T KNOW 3.3 System

53 Total With whom did [he/she] live? ZY55 lived with whom Valid 1 SPOUSE/PARTNER SON/STEPSON DAUGHTER/STEPDAUGHTER MOTHER BROTHER SISTER SISTER-IN-LAW GRANDDAUGHTER OTHER FEMALE RELATIVE Total Missing System Altogether, since [DATE fill c12] [fill inyr], how long has [he/she] lived in the household of a son, daughter, or other relative? ZY56 how long at son/daugher/relative

54 Valid Total Missing -1 DON'T KNOW 2.2 System Total ZY57 units at son/daughter/relative Valid 3 MONTHS YEARS Total Missing -1 DON'T KNOW 2.2 System

55 Total Descriptive Statistics N Minimum Maximum Mean Std. Deviation prxyint ZY ZY ZY ZY ZY8DTH ZY ZY ZY ZY12DTH ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY

56 ZY ZY31P01A ZY31P01B ZY31P01C ZY31P01D ZY31P01E ZY31P01F ZY31P01G ZY31P01H ZY32T01A ZY32T01B ZY32T02A ZY32T02B ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY ZY51A ZY ZY ZY ZY ZY ZY

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