Proxy Interviews. For example: CASEID case type 00003R 3 R 00011R 11 R

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Transcription:

Proxy Interviews A proxy interview was attempted when a main respondent was deceased or too ill to be interviewed at time 3, unless they had an NSFH1 spouse/partner. If there was to be an interview with a spouse/partner, this interview would cover the proxy questions about the main respondents death or illness as part of a more extensive series on this topic. There were two exceptions. Proxy interviews were sought if the NSFH1 spouse/partner was deceased or too ill to be interviewed, or if the couple was not together at time 2. A proxy was needed in the latter case because the NSFH3 spouse interview asked about experiences since wave 2, and hence any questions on spousal death or illness would not be about the main respondent. Proxy interviews for main respondents were not sought in the event that a surviving spouse/partner refused the wave 3 interview or could otherwise not be interviewed. Proxy interviews were only required for main respondents; no proxy was sought for deceased or too ill spouse/partners or focal children. ZY5 specifies whether the proxy interview was occasioned by death or illness. Variables ZY701 thru ZY27 are about Main Respondents who have died, the remainder are about those who were too ill to interview. The questions asked are represented in italics, and the variable name and label, appear before the frequency distribution on each variable. The frequencies and codes below are followed by descriptive statistics for the variables identified by their variable names. Cases are identified by three variables, CASEID, CASE, and TYPE. CASEID is a string variable and CASE is numeric. Since proxy interviews were conducted only respect to the main respondent, all are type R. For example: CASEID case type 00003R 3 R 00011R 11 R

FREQUENCIES How are you related to [MAINR]? Proxyint1 relation to main R Valid 1 SPOUSE/PARTNER 37 4.0 4.6 4.6 2 SON/STEPSON 172 18.6 21.4 26.0 3 SON-IN-LAW 5.5.6 26.6 4 DAUGHTER/STEPDAUGHTER 324 35.1 40.2 66.8 5 DAUGHTER-IN-LAW 37 4.0 4.6 71.4 6 BROTHER 22 2.4 2.7 74.2 7 BROTHER-IN-LAW 2.2.2 74.4 8 SISTER 58 6.3 7.2 81.6 9 SISTER-IN-LAW 11 1.2 1.4 83.0 10 OTHER RELATIVE 94 10.2 11.7 94.7 11 NEIGHBOR 5.5.6 95.3 12 FRIEND 33 3.6 4.1 99.4 13 ADMINISTRATOR OF ESTATE 1.1.1 99.5 14 HOME HEALTH AID 1.1.1 99.6 15 NURSING HOME/HOSPITAL STAFF 3.3.4 100.0 Total 805 87.1 100.0 Missing -2 REFUSED 7.8-1 DON'T KNOW 112 12.1 Total 119 12.9

ZY5 reason for proxy Valid 1 R IS DECEASED 702 76.0 76.0 76.0 2 R TOO ILL TO BE INTERVIEWED 222 24.0 24.0 100.0 Total 924 100.0 100.0 I have some questions about [MAINR]'s experiences between the time we interviewed [him/her] in [YEAR] and [his/her]death. In what month and year did [he/she] die? ZY701 month of death Valid 1 77 8.3 11.6 11.6 2 41 4.4 6.2 17.8 3 60 6.5 9.1 26.9 4 60 6.5 9.1 36.0 5 53 5.7 8.0 44.0 6 48 5.2 7.3 51.2 7 53 5.7 8.0 59.2 8 51 5.5 7.7 66.9 9 43 4.7 6.5 73.4 10 54 5.8 8.2 81.6 11 52 5.6 7.9 89.4 12 70 7.6 10.6 100.0 Total 662 71.6 100.0 Missing -1 DON'T KNOW 40 4.3

System 222 24.0 Total 262 28.4 ZY702 year of death Valid 1987 1.1.1.1 1989 1.1.1.3 1990 1.1.1.4 1991 3.3.4.9 1992 6.6.9 1.8 1993 34 3.7 5.1 6.9 1994 47 5.1 7.0 13.9 1995 72 7.8 10.7 24.6 1996 87 9.4 13.0 37.6 1997 74 8.0 11.0 48.6 1998 88 9.5 13.1 61.7 1999 91 9.8 13.6 75.3 2000 90 9.7 13.4 88.7 2001 58 6.3 8.6 97.3 2002 18 1.9 2.7 100.0 Total 671 72.6 100.0 Missing -1 DON'T KNOW 31 3.4 System 222 24.0 Total 253 27.4

What was the MAIN cause of [his/her]death? ZY8 main cause of death Frequency Percent Valid Percent Cumulative Valid 1 HEART DISEASE, HEART ATTACK 153 16.6 22.2 22.2 2 CANCER (MALIGNANCY, LEUKEMIA) 148 16.0 21.4 43.6 3 STROKE 47 5.1 6.8 50.4 4 ACCIDENT 5.5.7 51.2 6 PNEUMONIA/INFLUENZA 26 2.8 3.8 54.9 8 SUICIDE 3.3.4 55.4 9 DIABETES 8.9 1.2 56.5 10 CIRRHOSIS OF LIVER 5.5.7 57.2 11 EMPHYSEMA, CHRONIC BRONCHITIS, OR ASTHMA 15 1.6 2.2 59.4 12 SOME OTHER CAUSE (ENTER RESPONSE FOLLOWED BY //) 280 30.3 40.6 100.0 Total 690 74.7 100.0 Missing -2 REFUSED 2.2-1 DON'T KNOW 10 1.1 System 222 24.0 Total 234 25.3 Total 924 100.0 ZY8DTH OTHER CAUSE OF DEATH (CODE 12 ABOVE) CODED

Valid 1 HEART DISEASE, HEART ATTACK 32 3.5 11.4 11.4 2 CANCER (MALIGNANCY, LEUKEMIA) 14 1.5 5.0 16.4 3 STROKE 3.3 1.1 17.5 4 ACCIDENT 2.2.7 18.2 5 PNEUMONIA/INFLUENZA 3.3 1.1 19.3 8 DIABETES 4.4 1.4 20.7 9 CIRRHOSIS OF LIVER 1.1.4 21.1 10 EMPHYSEMA, CHRONIC BRONCHITIS, OR ASTHMA 1.1.4 21.4 15 MULTIPLE SCLEROSIS 1.1.4 21.8 16 ALZHEIMER'S 22 2.4 7.9 29.6 17 INFECTIONS 3.3 1.1 30.7 18 LIVER FAILURE 1.1.4 31.1 19 KIDNEY FAILURE 19 2.1 6.8 37.9 21 BLOOD CLOT 5.5 1.8 39.6 22 ANEURYSM 8.9 2.9 42.5 23 MULTI-SYSTEM FAILURE 1.1.4 42.9 24 AIDS 1.1.4 43.2 25 LIVER DISEASE 1.1.4 43.6 26 OLD AGE 62 6.7 22.1 65.7 29 PARKINSON'S DISEASE 5.5 1.8 67.5 30 CEREBRAL HEMORRHAGE 2.2.7 68.2 31 NATURAL CAUSES 14 1.5 5.0 73.2 32 STOMACH PROBLEMS, INTESTINAL BLOCKAGE 3.3 1.1 74.3 33 BREATHING PROBLEMS 4.4 1.4 75.7 35 BRAIN DAMAGE 1.1.4 76.1 37 SUDDEN DEATH SYNDROME 1.1.4 76.4 38 DEHYDRATION, MALNUTRITION 1.1.4 76.8 77 SOME OTHER CAUSE (SPECIFY) 61 6.6 21.8 98.6 98 NO ANSWER 4.4 1.4 100.0 Total 280 30.3 100.0 Missing System 644 69.7

How long was [MAINR] ill with the condition that resulted in [his/her] death? ZY9 how long ill Valid 0 NEVER ILL, DIED SUDDENLY 88 9.5 13.6 13.6 1 92 10.0 14.2 27.8 2 101 10.9 15.6 43.4 3 87 9.4 13.4 56.8 4 39 4.2 6.0 62.8 5 52 5.6 8.0 70.8 6 53 5.7 8.2 79.0 7 20 2.2 3.1 82.1 8 12 1.3 1.9 84.0 9 7.8 1.1 85.0 10 38 4.1 5.9 90.9 11 1.1.2 91.0 12 4.4.6 91.7 13 1.1.2 91.8 14 3.3.5 92.3 15 12 1.3 1.9 94.1 17 2.2.3 94.4 18 11 1.2 1.7 96.1 20 11 1.2 1.7 97.8 25 4.4.6 98.5 30 4.4.6 99.1 40 1.1.2 99.2 45 2.2.3 99.5 59 1.1.2 99.7 60 1.1.2 99.8 90 1.1.2 100.0 Total 648 70.1 100.0

Missing -1 DON'T KNOW 46 5.0 System 230 24.9 Total 276 29.9

ZY10 units of how long ill Valid 1 DAYS 34 3.7 6.1 6.1 2 WEEKS 58 6.3 10.4 16.4 3 MONTHS 151 16.3 27.0 43.4 4 YEARS 317 34.3 56.6 100.0 Total 560 60.6 100.0 Missing System 364 39.4 In addition to the condition that [MAINR] s death, did [he/she have any other chronic illness or condition at the time [he/she] died? ZY11 any other illness at time of death Valid 1 YES 323 35.0 47.0 47.0 2 NO 364 39.4 53.0 100.0 Total 687 74.4 100.0 Missing -2 REFUSED 1.1-1 DON'T KNOW 14 1.5 System 222 24.0 Total 237 25.6

ZY12DTH5 CAUSE OF DEATH CODED Frequency Percent Valid Percent Cumulative Valid 1 HEART DISEASE, HEART ATTACK 34 3.7 10.6 10.6 2 CANCER (MALIGNANCY, LEUKEMIA) 23 2.5 7.2 17.8 3 STROKE 16 1.7 5.0 22.7 4 ACCIDENT 1.1.3 23.1 5 PNEUMONIA/INFLUENZA 3.3.9 24.0 8 DIABETES 53 5.7 16.5 40.5 10 EMPHYSEMA, CHRONIC BRONCHITIS, OR ASTHMA 29 3.1 9.0 49.5 15 MULTIPLE SCLEROSIS 1.1.3 49.8 16 ALZHEIMER'S 10 1.1 3.1 53.0 17 INFECTIONS 1.1.3 53.3 19 KIDNEY FAILURE 2.2.6 53.9 22 ANEURYSM 1.1.3 54.2 23 MULTI-SYSTEM FAILURE 1.1.3 54.5 26 OLD AGE 3.3.9 55.5 29 PARKINSON'S DISEASE 4.4 1.2 56.7 32 STOMACH PROBLEMS, INTESTINAL BLOCKAGE 1.1.3 57.0 33 BREATHING PROBLEMS 5.5 1.6 58.6 34 BLOOD POISONING, BLEEDING DISORDER, BLOOD DISORDER 3.3.9 59.5 35 BRAIN DAMAGE 1.1.3 59.8 77 SOME OTHER CAUSE (SPECIFY) 128 13.9 39.9 99.7 99 NO ANSWER 1.1.3 100.0 Total 321 34.7 100.0 Missing System 603 65.3 Total 924 100.0

In the 12 months prior to [his/her] death about how many weeks was [he/she] hospitalized? ZY13 weeks hosp 12 mo prior to death Valid -4 WAS NOT HOSPITALIZED 156 16.9 23.3 23.3 0 LESS THAN ONE WEEK 132 14.3 19.7 43.0 1 67 7.3 10.0 53.0 2 81 8.8 12.1 65.1 3 56 6.1 8.4 73.4 4 48 5.2 7.2 80.6 5 13 1.4 1.9 82.5 6 25 2.7 3.7 86.3 7 2.2.3 86.6 8 31 3.4 4.6 91.2 9 7.8 1.0 92.2 10 14 1.5 2.1 94.3 12 16 1.7 2.4 96.7 14 1.1.1 96.9 15 1.1.1 97.0 16 3.3.4 97.5 17 1.1.1 97.6 20 2.2.3 97.9 24 1.1.1 98.1 25 2.2.3 98.4 26 2.2.3 98.7 40 2.2.3 99.0 52 7.8 1.0 100.0 Total 670 72.5 100.0 Missing -1 DON'T KNOW 32 3.5 System 222 24.0 Total 254 27.5

In the 12 months before [he/she] died, how many weeks was [he/she]in a nursing home, convalescent center, or similar place? ZY14 weeks nursing home 12 mo prior to death Frequency Percent Valid Percent Cumulative Valid -4 WAS NOT IN NURSING HOME, CONVALESCENT CENTER, ETC. 257 27.8 37.7 37.7 0 LESS THAN ONE WEEK 149 16.1 21.9 59.6 1 6.6.9 60.5 2 18 1.9 2.6 63.1 3 16 1.7 2.3 65.5 4 18 1.9 2.6 68.1 5 3.3.4 68.6 6 9 1.0 1.3 69.9 7 3.3.4 70.3 8 19 2.1 2.8 73.1 9 1.1.1 73.3 10 1.1.1 73.4 12 16 1.7 2.3 75.8 13 1.1.1 75.9 14 1.1.1 76.1 15 3.3.4 76.5 16 5.5.7 77.2 20 6.6.9 78.1 24 8.9 1.2 79.3 25 1.1.1 79.4 26 2.2.3 79.7 28 1.1.1 79.9 30 3.3.4 80.3 32 3.3.4 80.8 36 3.3.4 81.2

40 5.5.7 81.9 42 1.1.1 82.1 46 1.1.1 82.2 47 1.1.1 82.4 48 2.2.3 82.7 49 2.2.3 83.0 50 3.3.4 83.4 51 1.1.1 83.6 52 112 12.1 16.4 100.0 Total 681 73.7 100.0 Missing -2 REFUSED 1.1-1 DON'T KNOW 20 2.2 System 222 24.0 Total 243 26.3 Total 924 100.0 Not counting time in a hospital or a nursing home, how many (additional) weeks did [he/she] require daily physical care during the 12 months before [his/her] death? By physical care we mean help eating, bathing, dressing, or going to the bathroom. ZY15 add weeks required care 12 mo prior to death Valid -4 DID NOT REQUIRE DAILY PHYSICAL CARE 276 29.9 41.8 41.8 0 LESS THAN ONE WEEK 8.9 1.2 43.0 1 10 1.1 1.5 44.5 2 23 2.5 3.5 48.0 3 15 1.6 2.3 50.3 4 33 3.6 5.0 55.3 5 2.2.3 55.6

6 6.6.9 56.5 7 3.3.5 57.0 8 17 1.8 2.6 59.5 9 1.1.2 59.7 10 7.8 1.1 60.8 12 16 1.7 2.4 63.2 15 1.1.2 63.3 16 13 1.4 2.0 65.3 18 2.2.3 65.6 20 3.3.5 66.1 22 1.1.2 66.2 24 13 1.4 2.0 68.2 25 2.2.3 68.5 26 7.8 1.1 69.5 28 3.3.5 70.0 30 2.2.3 70.3 32 1.1.2 70.5 36 3.3.5 70.9 37 1.1.2 71.1 38 1.1.2 71.2 40 3.3.5 71.7 43 1.1.2 71.8 45 1.1.2 72.0 48 1.1.2 72.1 49 1.1.2 72.3 50 1.1.2 72.4 51 1.1.2 72.6 52 110 11.9 16.7 89.2 96 R WAS IN A NURSING HOME THE LAST 12 MONTHS 71 7.7 10.8 100.0 Total 660 71.4 100.0 Missing -2 REFUSED 2.2-1 DON'T KNOW 40 4.3 System 222 24.0 Total 264 28.6

Who provided most of this care? ZY16 who provided most care Frequency Percent ValidPercent Cumulative Valid -6 SOME OTHER PERSON (ENTER RESPONSE FOLLOWED BY //) 67 7.3 21.8 21.8 1 SPOUSE/PARTNER 24 2.6 7.8 29.5 2 SON/STEPSON 14 1.5 4.5 34.1 4 DAUGHTER/STEPDAUGHTER 94 10.2 30.5 64.6 5 DAUGHTER-IN-LAW 6.6 1.9 66.6 6 BROTHER 2.2.6 67.2 8 SISTER 11 1.2 3.6 70.8 10 OTHER FEMALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) 9 1.0 2.9 73.7 12 FEMALE FRIEND 5.5 1.6 75.3 13 PAID HELP 76 8.2 24.7 100.0 Total 308 33.3 100.0 Missing -1 DON'T KNOW 5.5 System 611 66.1 Total 616 66.7 Total 924 100.0 Just before [he/she] died, was [he/she]living: in [his/her own house or apartment, in the home of a son or daughter, in a nursing home, or somewhere else? ZY16 where living just before death Frequency Percent Valid Percent Cumulative Valid 1 IN (HIS/HER) OWN HOUSE OR APARTMENT 363 39.3 51.9 51.9 2 IN THE HOME OF A SON OR DAUGHTER 64 6.9 9.1 61.0

3 IN A NURSING HOME 202 21.9 28.9 89.9 4 SOMEWHERE ELSE (ENTER RESPONSE FOLLOWED BY //) 71 7.7 10.1 100.0 Total 700 75.8 100.0 Missing -1 DON'T KNOW 2.2 System 222 24.0 Total 224 24.2 Total 924 100.0 At any time since [LAST INT DATE) and (DATE OF DEATH] did [he/she live in the household of a son, daughter, or other relative? ZY18 since (date) live at son/daughter/relative Valid 1 YES 152 16.5 21.8 21.8 2 NO 544 58.9 78.2 100.0 Total 696 75.3 100.0 Missing -1 DON'T KNOW 6.6 System 222 24.0 Total 228 24.7 With whom did [he/she] live? Z19 lived with whom

Frequency Percent ValidPercent Cumulative Valid -6 OTHER (ENTER RESPONSE FOLLWED BY //) 5.5 3.3 3.3 2 SON/STEPSON 39 4.2 25.7 28.9 4 DAUGHTER/STEPDAUGHTER 76 8.2 50.0 78.9 5 DAUGHTER-IN-LAW 2.2 1.3 80.3 6 BROTHER 7.8 4.6 84.9 8 SISTER 9 1.0 5.9 90.8 9 SISTER-IN-LAW 2.2 1.3 92.1 10 OTHER FEMALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) 10 1.1 6.6 98.7 11 OTHER MALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) 2.2 1.3 100.0 Total 152 16.5 100.0 Missing System 772 83.5 Total 924 100.0 Altogether, since [YEAR], how long did [he/she]live in the household of a son, daughter, or other relative? Z20 how long at son/daugher/relative Valid -9 R'S ENTIRE LIFE 6.6 4.1 4.1 0 NEVER 2.2 1.4 5.5 1 13 1.4 9.0 14.5 2 24 2.6 16.6 31.0 3 26 2.8 17.9 49.0 4 15 1.6 10.3 59.3 5 11 1.2 7.6 66.9 6 18 1.9 12.4 79.3 7 5.5 3.4 82.8 8 8.9 5.5 88.3 9 2.2 1.4 89.7

10 2.2 1.4 91.0 12 3.3 2.1 93.1 14 1.1.7 93.8 15 2.2 1.4 95.2 16 1.1.7 95.9 18 1.1.7 96.6 30 1.1.7 97.2 39 1.1.7 97.9 40 1.1.7 98.6 52 1.1.7 99.3 62 1.1.7 100.0 Total 145 15.7 100.0 Missing -2 REFUSED 1.1-1 DON'T KNOW 6.6 System 772 83.5 Total 779 84.3 ZY21 units at son/daughter/relative Valid 1 DAYS 1.1.7.7 2 WEEKS 16 1.7 11.7 12.4 3 MONTHS 40 4.3 29.2 41.6 4 YEARS 80 8.7 58.4 100.0 Total 137 14.8 100.0 Missing System 787 85.2

At the time of [MAINR] s death, was [he/she] receiving income from a pension plan based on [his/her] own employment, other than Social Security? ZY22 receive pension other than SS at time of death Valid 1 YES 181 19.6 28.1 28.1 2 NO 463 50.1 71.9 100.0 Total 644 69.7 100.0 Missing -2 REFUSED 3.3-1 DON'T KNOW 55 6.0 System 222 24.0 Total 280 30.3 Did [he/she] work for pay at any time since [year]? ZY23 work for pay since (date) Valid 1 YES 88 9.5 12.8 12.8 2 NO 597 64.6 87.2 100.0 Total 685 74.1 100.0 Missing -1 DON'T KNOW 17 1.8 System 222 24.0

Total 239 25.9

In what year did [he/she] last work for pay? ZY24 year last worked for pay Valid 1987 1.1 1.3 1.3 1989 1.1 1.3 2.5 1991 2.2 2.5 5.1 1992 2.2 2.5 7.6 1993 3.3 3.8 11.4 1994 6.6 7.6 19.0 1995 18 1.9 22.8 41.8 1996 9 1.0 11.4 53.2 1997 13 1.4 16.5 69.6 1998 7.8 8.9 78.5 1999 5.5 6.3 84.8 2000 3.3 3.8 88.6 2001 4.4 5.1 93.7 2002 5.5 6.3 100.0 Total 79 8.5 100.0 Missing -1 DON'T KNOW 9 1.0 System 836 90.5 Total 845 91.5 In the last year that [he/she] was working, about how many hours per week did [he/she] usually work? ZY26 hours per week last year working

Valid 5 3.3 3.8 3.8 8 5.5 6.4 10.3 10 1.1 1.3 11.5 15 3.3 3.8 15.4 16 1.1 1.3 16.7 19 1.1 1.3 17.9 20 12 1.3 15.4 33.3 25 8.9 10.3 43.6 30 4.4 5.1 48.7 35 2.2 2.6 51.3 40 26 2.8 33.3 84.6 45 2.2 2.6 87.2 48 1.1 1.3 88.5 50 5.5 6.4 94.9 52 1.1 1.3 96.2 55 1.1 1.3 97.4 60 1.1 1.3 98.7 66 1.1 1.3 100.0 Total 78 8.4 100.0 Missing -1 DON'T KNOW 10 1.1 System 836 90.5 Total 846 91.6 Were there any periods of three months or longer between [LAST INT DATE] and when [he/she] stopped working in [DATE STOPPED WORKING ALTOGETHER] when [he/she] was not working? ZY27 any 3+ mo not work from (date) to date stopped Valid 1 YES 20 2.2 26.3 26.3

2 NO 56 6.1 73.7 100.0 Total 76 8.2 100.0 Missing -1 DON'T KNOW 12 1.3 System 836 90.5 Total 848 91.8

QUESTIONS ABOUT MAIN Rs TOO ILL TO INTERVIEW Where is [he/she] currently living? ZY28 where R currently lives Valid -6 OTHER (ENTER RESPONSE FOLLOWED BY //) 14 1.5 6.3 6.3 1 IN (HIS/HER) OWN HOUSE OR APARTMENT 78 8.4 35.1 41.4 2 IN THE HOME OF A SON OR DAUGHTER 24 2.6 10.8 52.3 3 IN THE HOME OF A GRANDCHILD 2.2.9 53.2 4 IN THE HOME OF A SISTER OR BROTHER 1.1.5 53.6 5 IN (HIS/HER) PARENT'S HOUSE 1.1.5 54.1 6 WITH AN OTHER RELATIVE 2.2.9 55.0 9 IN A NURSING HOME 89 9.6 40.1 95.0 10 IN THE HOSPITAL 1.1.5 95.5 11 IN A DRUG/ALCOHOL TREATMENT CENTER 1.1.5 95.9 13 IN A RETIREMENT HOME 9 1.0 4.1 100.0 Total 222 24.0 100.0 Missing System 702 76.0 In what month and year did [he/she] begin living (there)? ZY2901 month began living there Valid 1 18 1.9 9.8 9.8 2 14 1.5 7.7 17.5

3 11 1.2 6.0 23.5 4 16 1.7 8.7 32.2 5 16 1.7 8.7 41.0 6 17 1.8 9.3 50.3 7 15 1.6 8.2 58.5 8 18 1.9 9.8 68.3 9 11 1.2 6.0 74.3 10 19 2.1 10.4 84.7 11 13 1.4 7.1 91.8 12 15 1.6 8.2 100.0 Total 183 19.8 100.0 Missing -1 DON'T KNOW 39 4.2 System 702 76.0 Total 741 80.2 ZY02 year began living there Valid 1955 8.9 4.0 4.0 1956 2.2 1.0 5.0 1957 1.1.5 5.4 1958 2.2 1.0 6.4 1959 1.1.5 6.9 1960 2.2 1.0 7.9 1962 1.1.5 8.4 1963 1.1.5 8.9 1964 2.2 1.0 9.9 1966 1.1.5 10.4 1967 1.1.5 10.9 1968 1.1.5 11.4 1970 2.2 1.0 12.4

1972 1.1.5 12.9 1974 1.1.5 13.4 1975 1.1.5 13.9 1977 2.2 1.0 14.9 1978 1.1.5 15.3 1979 1.1.5 15.8 1980 2.2 1.0 16.8 1981 1.1.5 17.3 1982 1.1.5 17.8 1983 2.2 1.0 18.8 1984 1.1.5 19.3 1985 2.2 1.0 20.3 1986 1.1.5 20.8 1988 1.1.5 21.3 1989 1.1.5 21.8 1991 4.4 2.0 23.8 1992 4.4 2.0 25.7 1993 6.6 3.0 28.7 1994 9 1.0 4.5 33.2 1995 5.5 2.5 35.6 1996 11 1.2 5.4 41.1 1997 9 1.0 4.5 45.5 1998 15 1.6 7.4 53.0 1999 31 3.4 15.3 68.3 2000 28 3.0 13.9 82.2 2001 25 2.7 12.4 94.6 2002 11 1.2 5.4 100.0 Total 202 21.9 100.0 Missing -2 REFUSED 1.1-1 DON'T KNOW 19 2.1 System 702 76.0 Total 722 78.1

How many people live with [him/her] in that household? ZY30 how many people live there Valid 0 NONE 32 3.5 26.4 26.4 1 48 5.2 39.7 66.1 2 14 1.5 11.6 77.7 3 10 1.1 8.3 86.0 4 6.6 5.0 90.9 5 5.5 4.1 95.0 6 2.2 1.7 96.7 7 1.1.8 97.5 8 EIGHT OR MORE 3.3 2.5 100.0 Total 121 13.1 100.0 Missing -1 DON'T KNOW 1.1 System 802 86.8 Total 803 86.9 How are these people related to [him/her]? ZY31P01A how are they related - 1 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) 8.9 9.0 9.0 1 SPOUSE/PARTNER 22 2.4 24.7 33.7 2 SON/STEPSON 14 1.5 15.7 49.4 3 DAUGHTER/STEPDAUGHTER 28 3.0 31.5 80.9 5 DAUGHTER-IN-LAW 1.1 1.1 82.0

7 MOTHER 4.4 4.5 86.5 11 SISTER 3.3 3.4 89.9 14 GRANDSON 2.2 2.2 92.1 15 GRANDDAUGHTER 4.4 4.5 96.6 17 FEMALE FRIEND 1.1 1.1 97.8 18 GRANDCHILD/REN 1.1 1.1 98.9 20 OTHER FEMALE RELATIVE 1.1 1.1 100.0 Total 89 9.6 100.0 Missing -1 DON'T KNOW 1.1 System 834 90.3 Total 835 90.4 YZ31P01B how are they related - 2 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) 1.1 2.7 2.7 1 SPOUSE/PARTNER 1.1 2.7 5.4 2 SON/STEPSON 3.3 8.1 13.5 3 DAUGHTER/STEPDAUGHTER 2.2 5.4 18.9 4 SON-IN-LAW 9 1.0 24.3 43.2 5 DAUGHTER-IN-LAW 2.2 5.4 48.6 7 MOTHER 1.1 2.7 51.4 11 SISTER 1.1 2.7 54.1 14 GRANDSON 2.2 5.4 59.5 15 GRANDDAUGHTER 2.2 5.4 64.9 17 FEMALE FRIEND 1.1 2.7 67.6 18 GRANDCHILD/REN 6.6 16.2 83.8 19 GREAT GRANDCHILD/REN 2.2 5.4 89.2 20 OTHER FEMALE RELATIVE 3.3 8.1 97.3 21 OTHER MALE RELATIVE 1.1 2.7 100.0

Total 37 4.0 100.0 Missing -1 DON'T KNOW 4.4 System 883 95.6 Total 887 96.0 ZY31P01C how are they related - 3 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) 5.5 23.8 23.8 1 SPOUSE/PARTNER 2.2 9.5 33.3 2 SON/STEPSON 1.1 4.8 38.1 3 DAUGHTER/STEPDAUGHTER 1.1 4.8 42.9 4 SON-IN-LAW 1.1 4.8 47.6 5 DAUGHTER-IN-LAW 1.1 4.8 52.4 11 SISTER 1.1 4.8 57.1 14 GRANDSON 2.2 9.5 66.7 15 GRANDDAUGHTER 3.3 14.3 81.0 18 GRANDCHILD/REN 3.3 14.3 95.2 21 OTHER MALE RELATIVE 1.1 4.8 100.0 Total 21 2.3 100.0 Missing -2 REFUSED 2.2-1 DON'T KNOW 4.4 System 897 97.1 Total 903 97.7

ZY31P01D how are they related - 4 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) 1.1 8.3 8.3 3 DAUGHTER/STEPDAUGHTER 2.2 16.7 25.0 4 SON-IN-LAW 1.1 8.3 33.3 5 DAUGHTER-IN-LAW 1.1 8.3 41.7 15 GRANDDAUGHTER 4.4 33.3 75.0 18 GRANDCHILD/REN 1.1 8.3 83.3 20 OTHER FEMALE RELATIVE 1.1 8.3 91.7 21 OTHER MALE RELATIVE 1.1 8.3 100.0 Total 12 1.3 100.0 Missing -2 REFUSED 1.1-1 DON'T KNOW 4.4 System 907 98.2 Total 912 98.7 ZY31P01E how are they related - 5 Valid -6 OTHER (ENTER RESPONSE FOLLOWED //) 1.1 16.7 16.7 2 SON/STEPSON 1.1 16.7 33.3 14 GRANDSON 1.1 16.7 50.0 15 GRANDDAUGHTER 1.1 16.7 66.7 19 GREAT GRANDCHILD/REN 1.1 16.7 83.3 21 OTHER MALE RELATIVE 1.1 16.7 100.0 Total 6.6 100.0

Missing -1 DON'T KNOW 5.5 System 913 98.8 Total 918 99.4 ZY31P01F how are they related -6 Valid 1 SPOUSE/PARTNER 1.1 50.0 50.0 14 GRANDSON 1.1 50.0 100.0 Total 2.2 100.0 Missing -1 DON'T KNOW 4.4 System 918 99.4 Total 922 99.8 ZY31P01G how are they related - 7 Valid 3 DAUGHTER/STEPDAUGHTER 1.1 50.0 50.0 20 OTHER FEMALE RELATIVE 1.1 50.0 100.0 Total 2.2 100.0 Missing -1 DON'T KNOW 2.2

System 920 99.6 Total 922 99.8 ZY31P01H how are they related - 8 Valid 20 OTHER FEMALE RELATIVE 1.1 100.0 100.0 Missing -1 DON'T KNOW 2.2 System 921 99.7 Total 923 99.9 What is the most serious condition that [he/she] has? ZY32T01A CHRONIC HEALTH CONDITION 1 (ZY32T01) Valid 103 PNEUMONIA 1.1.5.5 129 FRACTURES AND DISLOCATIONS 1.1.5.9 201 CANCER 10 1.1 4.6 5.5 204 BENIGN TUMOR (SERIOUS) 2.2.9 6.4 205 ASTHMA 1.1.5 6.9 209 OTHER CHRONIC RESPIRATORY DISEASES 6.6 2.8 9.6 210 HEART ATTACK 3.3 1.4 11.0 212 HEART TROUBLE (SERIOUS) 24 2.6 11.0 22.0 213 STROKE, THROMBOSIS, HEMATOMA 16 1.7 7.3 29.4 214 HYPERTENSION 4.4 1.8 31.2

217 CHRONIC CIRCULATORY DISEASE 1.1.5 31.7 218 BLOOD DISORDERS 2.2.9 32.6 220 DIABETES MELLITUS 10 1.1 4.6 37.2 223 CHRONIC SKIN DISEASE 1.1.5 37.6 224 ARTHRITIS AND RHEUMATISM 8.9 3.7 41.3 225 OTHER CHRONIC MUSCULOSKELETAL DISORDER 8.9 3.7 45.0 226 SEIZURES 5.5 2.3 47.2 229 PEPTIC ULCER 1.1.5 47.7 234 CHRONIC URINARY OR MALE GENITAL DISEASES 1.1.5 48.2 235 BLINDNESS 2.2.9 49.1 237 SERIOUS VISUAL IMPAIRMENTS 4.4 1.8 50.9 238 CHRONIC HEARING PROBLEMS 12 1.3 5.5 56.4 239 PARALYSIS 3.3 1.4 57.8 240 1.1.5 58.3 242 SERIOUS CHHRONIC NEUROLOGICAL DISORDERS 11 1.2 5.0 63.3 250 MINOR PSYCHOLOGICAL PROBLEMS 6.6 2.8 66.1 251 INTERMEDIATE PSYCHIATRIC PROBLEMS 42 4.5 19.3 85.3 252 MENTAL ILLNESS 2.2.9 86.2 253 MENTAL RETARDATION 1.1.5 86.7 254 SENILITY 13 1.4 6.0 92.7 298 RESIDUAL CHRONIC CONDITION 12 1.3 5.5 98.2 409 FRACTURE OR DISLOCATION SETTING 1.1.5 98.6 436 HEART OPERATION 1.1.5 99.1 771 WALKING PROBLEMS NOT SPECIFIED 1.1.5 99.5 999 NO ANSWER 1.1.5 100.0 Total 218 23.6 100.0 Missing System 706 76.4 ZY32T01B CHRONIC HEALTH CONDITION 2 (ZY32T01)

Valid 126 ACUTE CIRCULATORY CONDITIONS 1.1 1.8 1.8 128 ACUTE MUSCULOSKELETAL DISORDERS (SERIOUS) 1.1 1.8 3.6 129 FRACTURES AND DISLOCATIONS 2.2 3.6 7.3 130 CONNECTIVE TISSUE DISORDER 1.1 1.8 9.1 201 CANCER 2.2 3.6 12.7 205 ASTHMA 1.1 1.8 14.5 209 OTHER CHRONIC RESPIRATORY DISEASES 4.4 7.3 21.8 210 HEART ATTACK 1.1 1.8 23.6 212 HEART TROUBLE (SERIOUS) 2.2 3.6 27.3 213 STROKE, THROMBOSIS, HEMATOMA 5.5 9.1 36.4 214 HYPERTENSION 1.1 1.8 38.2 217 CHRONIC CIRCULATORY DISEASE 1.1 1.8 40.0 220 DIABETES MELLITUS 2.2 3.6 43.6 224 ARTHRITIS AND RHEUMATISM 4.4 7.3 50.9 231 MILD DIGESTIVE DISEASES 1.1 1.8 52.7 235 BLINDNESS 1.1 1.8 54.5 237 SERIOUS VISUAL IMPAIRMENTS 2.2 3.6 58.2 238 CHRONIC HEARING PROBLEMS 1.1 1.8 60.0 239 PARALYSIS 3.3 5.5 65.5 250 MINOR PSYCHOLOGICAL PROBLEMS 1.1 1.8 67.3 251 INTERMEDIATE PSYCHIATRIC PROBLEMS 2.2 3.6 70.9 253 MENTAL RETARDATION 2.2 3.6 74.5 254 SENILITY 4.4 7.3 81.8 298 RESIDUAL CHRONIC CONDITION 2.2 3.6 85.5 305 DENTAL PROBLEMS 1.1 1.8 87.3 409 FRACTURE OR DISLOCATION SETTING 2.2 3.6 90.9 436 HEART OPERATION 3.3 5.5 96.4 771 WALKING PROBLEMS NOT SPECIFIED 2.2 3.6 100.0 Total 55 6.0 100.0 Missing System 869 94.0

What is the next most serious condition [he/she] has? ZY32T02A CHRONIC HEALTH CONDITION 1 (ZY32T02) Valid 103 PNEUMONIA 2.2 1.2 1.2 127 ACUTE VERTEBRAL OR LUMBAR DISORDER (MILD) 1.1.6 1.9 128 ACUTE MUSCULOSKELETAL DISORDERS (SERIOUS) 1.1.6 2.5 129 FRACTURES AND DISLOCATIONS 3.3 1.9 4.3 130 CONNECTIVE TISSUE DISORDER 1.1.6 5.0 201 CANCER 4.4 2.5 7.5 204 BENIGN TUMOR (SERIOUS) 2.2 1.2 8.7 205 ASTHMA 1.1.6 9.3 206 CHRONIC SINUSITIS OR BRONCHITIS 1.1.6 9.9 209 OTHER CHRONIC RESPIRATORY DISEASES 5.5 3.1 13.0 211 HEART TROUBLE (MILD) 2.2 1.2 14.3 212 HEART TROUBLE (SERIOUS) 14 1.5 8.7 23.0 213 STROKE, THROMBOSIS, HEMATOMA 7.8 4.3 27.3 214 HYPERTENSION 12 1.3 7.5 34.8 217 CHRONIC CIRCULATORY DISEASE 4.4 2.5 37.3 219 THYROID DISEASES 3.3 1.9 39.1 220 DIABETES MELLITUS 12 1.3 7.5 46.6 224 ARTHRITIS AND RHEUMATISM 10 1.1 6.2 52.8 225 OTHER CHRONIC MUSCULOSKELETAL DISORDER 5.5 3.1 55.9 226 SEIZURES 1.1.6 56.5 231 MILD DIGESTIVE DISEASES 2.2 1.2 57.8 234 CHRONIC URINARY OR MALE GENITAL DISEASES 1.1.6 58.4 235 BLINDNESS 2.2 1.2 59.6 237 SERIOUS VISUAL IMPAIRMENTS 7.8 4.3 64.0 238 CHRONIC HEARING PROBLEMS 4.4 2.5 66.5 239 PARALYSIS 2.2 1.2 67.7 240 1.1.6 68.3 242 SERIOUS CHHRONIC NEUROLOGICAL DISORDERS 3.3 1.9 70.2 250 MINOR PSYCHOLOGICAL PROBLEMS 3.3 1.9 72.0 251 INTERMEDIATE PSYCHIATRIC PROBLEMS 5.5 3.1 75.2 253 MENTAL RETARDATION 3.3 1.9 77.0

254 SENILITY 9 1.0 5.6 82.6 298 RESIDUAL CHRONIC CONDITION 14 1.5 8.7 91.3 307 AUTO ACCIDENT 1.1.6 91.9 418 OTHER DIGESTIVE OPERATIONS 1.1.6 92.5 421 MASTECTOMY 1.1.6 93.2 432 CANCER OPERATION 1.1.6 93.8 436 HEART OPERATION 1.1.6 94.4 771 WALKING PROBLEMS NOT SPECIFIED 5.5 3.1 97.5 998 2.2 1.2 98.8 999 NO ANSWER 2.2 1.2 100.0 Total 161 17.4 100.0 Missing System 763 82.6 What is the next most serious condition [he/she] has? ZY32T02B CHRONIC HEALTH CONDITION 2 (ZY32T02) Valid 201 CANCER 2.2 6.9 6.9 212 HEART TROUBLE (SERIOUS) 1.1 3.4 10.3 213 STROKE, THROMBOSIS, HEMATOMA 4.4 13.8 24.1 214 HYPERTENSION 2.2 6.9 31.0 217 CHRONIC CIRCULATORY DISEASE 1.1 3.4 34.5 220 DIABETES MELLITUS 1.1 3.4 37.9 224 ARTHRITIS AND RHEUMATISM 2.2 6.9 44.8 234 CHRONIC URINARY OR MALE GENITAL DISEASES 1.1 3.4 48.3 237 SERIOUS VISUAL IMPAIRMENTS 1.1 3.4 51.7 238 CHRONIC HEARING PROBLEMS 2.2 6.9 58.6 251 INTERMEDIATE PSYCHIATRIC PROBLEMS 1.1 3.4 62.1 253 MENTAL RETARDATION 1.1 3.4 65.5 254 SENILITY 1.1 3.4 69.0

298 RESIDUAL CHRONIC CONDITION 3.3 10.3 79.3 436 HEART OPERATION 2.2 6.9 86.2 771 WALKING PROBLEMS NOT SPECIFIED 4.4 13.8 100.0 Total 29 3.1 100.0 Missing System 895 96.9 Does [he/she] need assistance with bathing or showering? ZY33 need assistance with bathing/showering Valid 1 YES 150 16.2 68.2 68.2 2 NO 70 7.6 31.8 100.0 Total 220 23.8 100.0 Missing -1 DON'T KNOW 2.2 System 702 76.0 Total 704 76.2 (Does [he/she need assistance with)...dressing? ZY34 need assistance with dressing

Valid 1 YES 118 12.8 53.6 53.6 2 NO 102 11.0 46.4 100.0 Total 220 23.8 100.0 Missing -1 DON'T KNOW 2.2 System 702 76.0 Total 704 76.2 (Does [he/she need assistance with)...eating? ZY35 need assistance with eating Valid 1 YES 60 6.5 27.4 27.4 2 NO 159 17.2 72.6 100.0 Total 219 23.7 100.0 Missing -1 DON'T KNOW 3.3 System 702 76.0 Total 705 76.3 (Does [he/she] need assistance with)

...getting in or out of bed or a chair? ZY36 need assistance with getting in/out bed/chair Valid 1 YES 99 10.7 45.8 45.8 2 NO 117 12.7 54.2 100.0 Total 216 23.4 100.0 Missing -1 DON'T KNOW 6.6 System 702 76.0 Total 708 76.6 (Does [he/she] need assistance with)...using the toilet? ZY37 need assistance with using toilet Valid 1 YES 95 10.3 43.2 43.2 2 NO 125 13.5 56.8 100.0 Total 220 23.8 100.0 Missing -1 DON'T KNOW 2.2 System 702 76.0 Total 704 76.2

How long has [he/she] needed assistance with these activities? ZY38 how long needed assistance Valid 0 NEVER NEEDS ASSISTANCE 51 5.5 24.1 24.1 1 28 3.0 13.2 37.3 2 34 3.7 16.0 53.3 3 25 2.7 11.8 65.1 4 19 2.1 9.0 74.1 5 9 1.0 4.2 78.3 6 14 1.5 6.6 84.9 7 7.8 3.3 88.2 8 9 1.0 4.2 92.5 10 5.5 2.4 94.8 12 3.3 1.4 96.2 15 3.3 1.4 97.6 18 4.4 1.9 99.5 24 1.1.5 100.0 Total 212 22.9 100.0 Missing -1 DON'T KNOW 10 1.1 System 702 76.0 Total 712 77.1 unit of time needed assist

Valid 2 WEEKS 3.3 1.9 1.9 3 MONTHS 47 5.1 29.2 31.1 4 YEARS 111 12.0 68.9 100.0 Total 161 17.4 100.0 Missing System 763 82.6 In the past 12 months, has [he/she] received help or assistance from anyone WHO WAS NOT LIVING WITH [him/her]? ZY40 receive help past 12 mo from not living with Frequency Percent Valid Percent Cumula Valid 1 YES 95 10.3 43.2 43.2 2 NO 84 9.1 38.2 81.4 3 R IN NURSING HOME OR OTHER FACILITY FOR 12 MONTHS OR MORE 41 4.4 18.6 100.0 Total 220 23.8 100.0 Missing -1 DON'T KNOW 2.2 System 702 76.0 Total 704 76.2 Total 924 100.0 Who provided the most help? ZY41 who provided most help

Frequency Percent Valid Percent Cumulative Valid -6 SOME OTHER PERSON (ENTER RESPONSE FOLLOWED BY //) 25 2.7 26.9 26.9 1 SPOUSE/PARTNER 1.1 1.1 28.0 2 SON/STEPSON 4.4 4.3 32.3 4 DAUGHTER/STEPDAUGHTER 21 2.3 22.6 54.8 5 DAUGHTER-IN-LAW 1.1 1.1 55.9 6 BROTHER 2.2 2.2 58.1 8 SISTER 5.5 5.4 63.4 9 SISTER-IN-LAW 1.1 1.1 64.5 10 OTHER FEMALE RELATIVE 5.5 5.4 69.9 13 PAID HELP 27 2.9 29.0 98.9 14 MALE FRIEND 1.1 1.1 100.0 Total 93 10.1 100.0 Missing -1 DON'T KNOW 2.2 System 829 89.7 Total 831 89.9 Total 924 100.0 ZY42 male or female Valid 1 MALE 14 1.5 16.9 16.9 2 FEMALE 69 7.5 83.1 100.0 Total 83 9.0 100.0 Missing -1 DON'T KNOW 12 1.3 System 829 89.7

Total 841 91.0 In about how many different weeks during the last 12 months did this person help? ZY43 weeks help last 12 mo from this person Valid 0 LESS THAN ONE WEEK 2.2 2.2 2.2 1 1.1 1.1 3.3 2 2.2 2.2 5.5 3 11 1.2 12.1 17.6 4 3.3 3.3 20.9 5 2.2 2.2 23.1 6 4.4 4.4 27.5 8 1.1 1.1 28.6 10 1.1 1.1 29.7 12 3.3 3.3 33.0 16 2.2 2.2 35.2 20 5.5 5.5 40.7 24 1.1 1.1 41.8 26 2.2 2.2 44.0 35 1.1 1.1 45.1 36 2.2 2.2 47.3 40 2.2 2.2 49.5 48 1.1 1.1 50.5 50 1.1 1.1 51.6 52 44 4.8 48.4 100.0 Total 91 9.8 100.0 Missing -1 DON'T KNOW 4.4 System 829 89.7

Total 833 90.2 During those weeks, about how many hours per week on the average did this person help? ZY44 average hours helped per week Valid 0 LESS THAN ONE HOUR PER WEEK 3.3 3.8 3.8 1 3.3 3.8 7.5 2 5.5 6.3 13.8 3 8.9 10.0 23.8 4 2.2 2.5 26.3 5 7.8 8.8 35.0 6 5.5 6.3 41.3 7 1.1 1.3 42.5 10 3.3 3.8 46.3 12 3.3 3.8 50.0 14 3.3 3.8 53.8 15 5.5 6.3 60.0 16 2.2 2.5 62.5 20 3.3 3.8 66.3 21 1.1 1.3 67.5 24 2.2 2.5 70.0 25 4.4 5.0 75.0 28 1.1 1.3 76.3 30 1.1 1.3 77.5 35 1.1 1.3 78.8 40 4.4 5.0 83.8 50 3.3 3.8 87.5 60 1.1 1.3 88.8 75 75 OR MORE HOURS PER WEEK 9 1.0 11.3 100.0 Total 80 8.7 100.0

Missing -2 REFUSED 1.1-1 DON'T KNOW 14 1.5 System 829 89.7 Total 844 91.3 At any time in the last 12 months, did [he/she] RECEIVE help with personal care from anyone WHO WAS LIVING WITH [him/her]? ZY45 receive help past 12 mo from living with Frequency Percent Perrcent Cumulative Valid 1 YES 70 7.6 32.0 32.0 2 NO 103 11.1 47.0 79.0 3 R IN NURSING HOME OR OTHER FACILITY FOR 12 MONTHS OR MORE 46 5.0 21.0 100.0 Total 219 23.7 100.0 Missing -2 REFUSED 1.1-1 DON'T KNOW 2.2 System 702 76.0 Total 705 76.3 Total 924 100.0 Who provided [him/her] with the most help with personal care? ZY46 who provided most help

Frequency Percent ValidPercent Cumulative Valid -6 SOME OTHER PERSON (ENTER RESPONSE FOLLOWED BY //) 7.8 10.0 10.0 1 SPOUSE/PARTNER 9 1.0 12.9 22.9 2 SON/STEPSON 3.3 4.3 27.1 4 DAUGHTER/STEPDAUGHTER 31 3.4 44.3 71.4 5 DAUGHTER-IN-LAW 2.2 2.9 74.3 7 BROTHER-IN-LAW 1.1 1.4 75.7 8 SISTER 3.3 4.3 80.0 10 OTHER FEMALE RELATIVE (ENTER RESPONSE FOLLOWED BY //) 8.9 11.4 91.4 13 PAID HELP 6.6 8.6 100.0 Total 70 7.6 100.0 Missing System 854 92.4 Total 924 100.0 About how many weeks during the last 12 months did [he/she] receive help with personal care from this person? ZY47 weeks help last 12 mo from this person Valid 0 LESS THAN ONE WEEK 1.1 1.5 1.5 1 2.2 2.9 4.4 2 1.1 1.5 5.9 4 1.1 1.5 7.4 6 2.2 2.9 10.3 10 1.1 1.5 11.8 12 1.1 1.5 13.2 13 1.1 1.5 14.7 16 2.2 2.9 17.6 20 1.1 1.5 19.1 25 1.1 1.5 20.6

26 1.1 1.5 22.1 32 2.2 2.9 25.0 36 1.1 1.5 26.5 40 2.2 2.9 29.4 48 2.2 2.9 32.4 49 1.1 1.5 33.8 50 1.1 1.5 35.3 51 1.1 1.5 36.8 52 43 4.7 63.2 100.0 Total 68 7.4 100.0 Missing -1 DON'T KNOW 2.2 System 854 92.4 Total 856 92.6 Does [he/she] receive income from a pension plan based on [his/her] own employment, other than Social Security? ZY48 receive pension other than ss Valid 1 YES 56 6.1 27.1 27.1 2 NO 151 16.3 72.9 100.0 Total 207 22.4 100.0 Missing -2 REFUSED 3.3-1 DON'T KNOW 12 1.3 System 702 76.0 Total 717 77.6

Did [he/she] work for pay at any time since [DATE LAST INT]? ZY49 work for pay since (date) Valid 1 YES 20 2.2 9.3 9.3 2 NO 196 21.2 90.7 100.0 Total 216 23.4 100.0 Missing -1 DON'T KNOW 6.6 System 702 76.0 Total 708 76.6 In what year did [he/she] last work? ZY50 year last worked Valid 1989 1.1 5.3 5.3 1991 1.1 5.3 10.5 1993 2.2 10.5 21.1 1994 1.1 5.3 26.3 1995 1.1 5.3 31.6 1996 2.2 10.5 42.1

1997 1.1 5.3 47.4 1998 1.1 5.3 52.6 1999 4.4 21.1 73.7 2000 2.2 10.5 84.2 2001 3.3 15.8 100.0 Total 19 2.1 100.0 Missing -1 DON'T KNOW 1.1 System 904 97.8 Total 905 97.9 In the last year that [he/she] was working, about how many hours per week did [he/she] usually work? ZY52 hours per week last year working Valid 1 1.1 5.3 5.3 2 2.2 10.5 15.8 12 1.1 5.3 21.1 20 2.2 10.5 31.6 25 1.1 5.3 36.8 30 3.3 15.8 52.6 32 1.1 5.3 57.9 40 6.6 31.6 89.5 45 1.1 5.3 94.7 70 1.1 5.3 100.0 Total 19 2.1 100.0 Missing System 905 97.9

Were there any periods of three months or longer between [DATE OF LAST INT] and [DATE] when [he/she] stopped working in [fill qzz50] when [he/she] was not working? ZY53 any 3+ mo not work from (date) to date stopped Valid 1 YES 4.4 23.5 23.5 2 NO 13 1.4 76.5 100.0 Total 17 1.8 100.0 Missing -1 DON'T KNOW 2.2 System 905 97.9 Total 907 98.2 At any time since [DATE LAST INT] did [he/she] live in the household of a son or daughter or other relative? ZY54 since (date) live at son/daughter/relative Valid 1 YES 52 5.6 23.7 23.7 2 NO 167 18.1 76.3 100.0 Total 219 23.7 100.0 Missing -1 DON'T KNOW 3.3 System 702 76.0

Total 705 76.3 With whom did [he/she] live? ZY55 lived with whom Valid 1 SPOUSE/PARTNER 2.2 3.8 3.8 2 SON/STEPSON 11 1.2 21.2 25.0 3 DAUGHTER/STEPDAUGHTER 28 3.0 53.8 78.8 7 MOTHER 1.1 1.9 80.8 10 BROTHER 1.1 1.9 82.7 11 SISTER 5.5 9.6 92.3 13 SISTER-IN-LAW 1.1 1.9 94.2 15 GRANDDAUGHTER 2.2 3.8 98.1 17 OTHER FEMALE RELATIVE 1.1 1.9 100.0 Total 52 5.6 100.0 Missing System 872 94.4 Altogether, since [DATE fill c12] [fill inyr], how long has [he/she] lived in the household of a son, daughter, or other relative? ZY56 how long at son/daugher/relative

Valid 1 3.3 6.0 6.0 2 12 1.3 24.0 30.0 3 5.5 10.0 40.0 4 6.6 12.0 52.0 5 4.4 8.0 60.0 6 3.3 6.0 66.0 7 3.3 6.0 72.0 8 3.3 6.0 78.0 9 1.1 2.0 80.0 10 2.2 4.0 84.0 12 1.1 2.0 86.0 14 2.2 4.0 90.0 15 2.2 4.0 94.0 18 1.1 2.0 96.0 19 1.1 2.0 98.0 24 1.1 2.0 100.0 Total 50 5.4 100.0 Missing -1 DON'T KNOW 2.2 System 872 94.4 Total 874 94.6 ZY57 units at son/daughter/relative Valid 3 MONTHS 13 1.4 26.0 26.0 4 YEARS 37 4.0 74.0 100.0 Total 50 5.4 100.0 Missing -1 DON'T KNOW 2.2 System 872 94.4

Total 874 94.6 Descriptive Statistics N Minimum Maximum Mean Std. Deviation prxyint1 805 1 15 5.03 3.115 ZY5 924 1 2 1.24.427 ZY701 662 1 12 6.42 3.612 ZY702 671 1987 2002 1997.42 2.544 ZY8 690 1 12 6.43 4.986 ZY8DTH 280 1 98 32.04 27.296 ZY9 648 0 90 5.05 7.283 ZY10 560 1 4 3.34.893 ZY11 687 1 2 1.53.499 ZY12DTH 321 1 99 36.20 34.286 ZY13 670-4 52 2.30 7.313 ZY14 681-4 52 10.28 20.830 ZY15 660-4 96 20.89 33.127 ZY16 308-6 13 4.20 6.741 ZY17 700 1 4 1.97 1.102 ZY18 696 1 2 1.78.413 ZY19 152-6 11 4.05 2.976 ZY20 145-9 62 5.39 8.788 ZY21 137 1 4 3.45.727 ZY22 644 1 2 1.72.450 ZY23 685 1 2 1.87.335 ZY24 79 1987 2002 1996.39 2.959 ZY26 78 5 66 31.23 14.278 ZY27 76 1 2 1.74.443 ZY28 222-6 13 4.54 4.843 ZY2901 183 1 12 6.48 3.450 ZY2902 202 1955 2002 1991.89 13.487

ZY30 121 0 8 1.64 1.835 ZY31P01A 89-6 20 3.31 5.361 ZY31P01B 37-6 21 10.08 7.654 ZY31P01C 21-6 21 6.90 9.581 ZY31P01D 12-6 21 10.67 8.500 ZY31P01E 6-6 21 10.83 10.572 ZY31P01F 2 1 14 7.50 9.192 ZY31P01G 2 3 20 11.50 12.021 ZY31P01H 1 20 20 20.00. ZY32T01A 218 103 999 241.00 70.436 ZY32T01B 55 126 771 259.80 122.233 ZY32T02A 161 103 999 268.06 157.022 ZY32T02B 29 201 771 321.86 191.843 ZY33 220 1 2 1.32.467 ZY34 220 1 2 1.46.500 ZY35 219 1 2 1.73.447 ZY36 216 1 2 1.54.499 ZY37 220 1 2 1.57.496 ZY38 212 0 24 3.42 3.983 ZY39 161 2 4 3.67.510 ZY40 220 1 3 1.75.749 ZY41 93-6 14 4.56 7.429 ZY42 83 1 2 1.83.377 ZY43 91 0 52 32.08 21.744 ZY44 80 0 75 21.24 23.528 ZY45 219 1 3 1.89.721 ZY46 70-6 13 4.23 4.849 ZY47 68 0 52 41.47 17.577 ZY48 207 1 2 1.73.445 ZY49 216 1 2 1.91.291 ZY50 19 1989 2001 1996.89 3.573 ZY51A 19-6 -6-6.00.000 ZY52 19 1 70 29.42 17.289 ZY53 17 1 2 1.76.437 ZY54 219 1 2 1.76.426 ZY55 52 1 17 4.62 4.088 ZY56 50 1 24 6.18 5.263 ZY57 50 3 4 3.74.443